Monday, May 16, 2011
Loneliness of Visiting
This hit home with me and thought it was thought provoking and put words to the tension and frustration of medicine and of the care of the sick.
“The problem is the poor chap is lonely. If they sat with him a little more, they wouldn't need to call us as much!” My harassed intern is venting her frustration with Mr. Wilson's relatives. The 76-year-old man has languished in the hospital for the past 3 months, a resident of practically every major unit in turn. He was first admitted to Surgery for an emergency laparotomy, which revealed bowel cancer. From there, he went to Rehab for a short stint. But he developed pneumonia and was transferred to the Medicine unit, where he needed an isolation bay. When he became agitated, the night resident gave him haloperidol. But he became sedated and, unable to find his call bell or attract anyone's attention through the closed doors, he got up unassisted — and fell, fracturing his hip. Ortho took him to the operating theater, after which he returned to Rehab. Two weeks into Rehab, his abdominal wound dehisced. So he is back in Medicine for antibiotics and wound care.
We, his medical team, sense another disaster lurking around the corner. His notes have spilled into another volume; his name tops the list of long-stayers, and although we try not to contaminate him with our sentiments, a certain pessimism clings to us. Just yesterday, I found myself telling the medical students, “Every day he spends here he is at risk for a new complication.” It was the most relevant teaching point I could come up with.
Mr. Wilson belongs to the diminishing category of people who have “never been to the hospital until this happened.” Now, he feels battered by his circumstances. He has no appetite. The wound is malodorous. His arms are bruised from regular IV changes. The repaired hip feels stiff. To the well-meaning psychiatrist he carefully explains the difference between being depressed and finding the situation depressing, though lately he seems even more withdrawn. He answers in affable monosyllables. Often he just listens passively, not bothering to protest or engage. His transformation from active citizen to dependent patient is complete.
Mrs. Wilson, though pleasant and concerned, is an old 85, troubled by an osteoporotic spine. Her daughters used to drive her in and sit with their father, but the visits have gradually become shorter and fewer. They have full-time jobs and families.
“Why don't they come anymore?” I ask the intern.
“I don't know,” she muses. “It's almost like they have stopped caring what happens.”
What happens next in my life seems to have occurred almost by design: “I have bad news,” an acquaintance phones to tell me. “Brad had a stroke — he's in the ICU.”
I have known Brad since my student days. Alarmed, I rush in. He lies in intensive care, intubated and senseless after undergoing emergency neurosurgery for a brain hemorrhage. His head is bandaged, and there are tubes everywhere. The ventilator displays reassuring numbers, but an intubated patient dependent on a machine to draw breath seems the epitome of vulnerability. His blood pressure is precariously high. A drain tube snakes out of his skull. A urinary catheter hangs off the other end of the bed. There are multiple IV lines, a nasogastric tube, bulky compression stockings on his legs, mittens on his hands. Even with his substantial build, Brad seems dwarfed by the surrounding paraphernalia.
Visiting on the days that follow, I edge my chair close to his bed. I say a few words, self-consciously wondering whether he can hear me. His extubation is the first opportunity to assess recovery. To everyone's disappointment, he exhibits unilateral neglect and excessive agitation. Within a day, he is diagnosed with pneumonia. It is impossible to ascertain whether he is agitated owing to pain, pneumonia, or the stroke.
The fog in his head seems dense. Even without sedation, he can stay awake only for minutes. If you stand in front of him, his gaze might meet yours, but it takes the eye of faith to read recognition into it.
“Take my hand,” I urge. Sometimes I imagine a weak squeeze in return, but other times his hand falls limply to the side. The effort of turning in bed is too much. His face becomes red and flushed as he rests back, defeated.
An uncomfortable witness to his situation, I reach reflexively for my phone. But I had to turn it off, so I cannot go through my messages and pictures, which are months old and of no consequence but would make for an easy distraction. My newspaper is unwieldy in the small space. The precautionary gown and gloves makes it even more impractical to hold Brad's hand. A touch through powdery gloves feels slippery in practice and intent. I look up, but there is not even a muted television screen to stare at mindlessly. The nurse busies herself with the next round of medications, and we make small talk. I tell her Brad and I go back 20 years. “That's special, Brad!” she enthuses. He looks at her blankly and innocently. My heart sinks. It seems unkind to leave but painful to stay.
And so it is during repeated visits to Brad that I realize just how difficult and lonely visiting a patient can be. In fact, the sicker and needier the patient, the harder it is. Sitting with Brad, with neither conversation nor technology to distract me, I am forced to consider the vagaries of life. There we were, only 2 weeks ago, relishing lunch on a patch of green and watching my children bounce on the trampoline. For all I know, we may have had our last full conversation. As I take in his tired body, I fear what lies ahead for him. Will his pneumonia worsen? Will his hypertension abate? Will he be able to recall the countries he has traveled to and the books he has read? No doctor knows. No test can tell. To be in the powerhouse of medicine and yet be stumped by these questions is maddening. Brad's fate could be anyone's fate — it is an introduction to one's mortality, and it gives pause for thought.
And slowly, I see why it might be easier to just make phone calls from the safety of one's home than to be witness to a seemingly unending stream of medical misfortunes. Or why it might seem like a good idea to slow down the visits or find a dozen other things that take precedence over visiting someone in the hospital.
In response to my expectant eyes one day, Brad's doctor summarizes his progress. Her first five sentences are laden with medical jargon, which I follow silently until she halts. “I am sorry — are you a doctor?”
“Yes, but I am here as his friend.”
“OK, so you understand.” She relaxes and continues her summary.
In fact, I have many questions and even more worries, but with her feet already pointed toward the door, I feel like an intruder.
I would like to deny it, but in her, I see a reflection of myself and my colleagues, and it makes me feel ill at ease. I wonder if we become so accustomed to speaking in jargon that it becomes the dialect of first choice. How little must patients and their relatives really understand of our attempts to communicate with them. How many cues are missed on an average ward round? Could the way we talk make relatives feel uncomfortable instead of involved?
My mind goes back to the Wilson family. Their reticence now seems somewhat easier to understand, their silence easier to sympathize with. I can't remember the last time someone arranged to sit down with them, although many teams diligently flock past his bedside every day. I am confident that our pessimism is matched by their lack of empowerment. I realize that their puzzling reaction to illness is not so much selfishness as self-insulation.
I am not quite sure yet how I will teach my young intern the difference, but I feel lighter for knowing it myself.
Monday, January 3, 2011
Little children
I found myself fascinated by the parents today:
The father who I immediately judged as I walked in the room by his loosely fitting pants perilously hanging from his hips, the long hair and the unsmiling demeanor. But as I watched him throughout the interview I was impressed with how loving a father he was. He seemed to always know what his nonverbal daughter needed~he suctioned her airways, he managed the feeding tubes and he lifted her weak body into his arms to hold her safely to himself. I saw his stressed and sick child crumple peacefully in the security of his arms.
Another mother came in with her 4 year old daughter. She was a single mom, frazzled, sleepless with dark rings around the eyes on her bare face. Her hair pulled back in the pony tail that tells the tale of a woman with no time for herself. She was harassed and short tempered and had unending exhaustion. I wanted to take her aside and know how she was doing. How she was holding up in the chaos of her life... And I wondered what happens when she lost her last straw of sanity...
I think I would be a pretty sucky pediatrician.
Thursday, December 9, 2010
Thank you for remembering that I'm a person too
Thursday, November 18, 2010
Dialysis
Saturday, October 23, 2010
Sunday, October 17, 2010
being the bad guy
I walked back into the room knowing that the conversation would end poorly. She had already fired physicians this year when they told her that she was getting better and I figured she'd have no qualms about yelling at a medical student. As I explained that we ruled out a DVT and cellulitis as possible causes and told her that we wouldn't be able to give her any additional pain medications, as I calmly told her that her pain doc recommended discharge and followup in his office, and as I told her there was nothing that necessitated her being admitted, the anger struck. And it was at me.
As medical students, the residents and attendings usually shield us from the anger of the patient. This was the first time that I and I alone was delivering news that was unwelcome. As I apologized that she felt so unhappy with her care and told her what the doctors said, I was the bad guy. I wasn't the smiling happy medical student that the patients love because we are the innocent bystander. I was the one she was mad at. I was the one she was criticizing and yelling at.
As a people-pleaser, this bothered me and made me uncomfortable. It made me feel that I wasn't taking care of the patient. That we were missing something. But then I brought myself back to reality. While I don't feel like I did anything good for my patient, I felt like i was acting on the principle "do no harm." It sucked and I felt awful that I couldn't make her pain go away. That I couldn't make it all better. But I guess this is life. Sometimes I'm going to have to make tough calls that aren't what my patients want in the interest of preventing harm. It was an uncomfortable feeling.
Saturday, October 9, 2010
dove promise. and other random reflections
This is the second time that this question has surfaced in the past year and it's one that sticks with me. I've realized that I'm a human dictated by fear and timidity much of the time. I live in indecision because i don't want to risk making the wrong choice. The main criticism from my last rotation was that I needed to be more confident and assertive. I'm trying hard to take the risk of saying something wrong or stupid. To push myself to put myself on the line. I know I need to do that in order to be a good doctor, but for some reason I'm petrified of looking stupid. Thursday night when I was on call, I tried to be decisive, to be assertive, to not freak out when the resident handed the phone to me to give report to the attending at 2am. To give my opinion even when I knew it was wrong. I feel/hope it will facilitate better learning and adequately prepare me to be a decisive, confident physician who my patients can trust.
So in light of this new goal in my life, I once again ask the question "What would I try if I knew I couldn't fail?" What does my dream life look like? Is it policy, international medicine, working with youth? Is it something grand, or is it something that'll be a piece of the puzzle? Do I not attempt because I fear failure or because I'm overwhelmed by the possibility?
I miss India. I miss the dreams that it inspired in me. The goals and direction that it gave my life. I want to go back to that focus, that direction, that intentionality. "You get a strange feeling when you’re about to leave a place, I told him, like you’ll not only miss the people you love but you’ll miss the person you are now at this time and this place, because you’ll never be this way ever again.” Reading Lolita in Tehran. It describes my transition exactly. I miss the flexibility in my life, but also the intentionality and discipline that were present in my relationships, my quiet times, my exercise and my reading. How do I bring those pieces of me into my busy and distracted life here in the states?
Sunday, August 15, 2010
Mortality
I layed in bed last night with my mind racing. Planning how I would react if I got in a car accident on my way back to Youngstown this evening. Walking through what I would do and how it would feel to be in a trauma bay with my classmates in the room as I lay on the bed with my clothes cut off and tubing being shoved down my throat. As I was lying there, I remembered my drive home from the hospital on Thursday. How I played through the same scenerio. How I pictured the humiliation of being wheeled into the trauma bay at St. E’s with all the residents and attendings that have been my colleagues and teachers for the last few weeks.
These are new thoughts for me. Working in the ICU with teenage patients, healthy 40-something year olds and college students who have been taken out by a car accident, ATV crash, or any other freak accident you can imagine seems to have brought me to terms with my mortality. Seeing previously healthy people being knocked down by accident and illness with no prior hints has been humbling to me. Who am I to think that I’m above a freak accident? Who am I to think that “this” could never happen to me?

I had my first patient who was actively dying on Friday. It didn’t phase me much at the time. I was engaged and interested, but not really bothered by the idea that this man most likely could be ‘expired’ by morning. But then this morning at church we were singing “Sin has lost its power, death has lost its sting” and it all of a sudden hit me. I wondered if I could really rest in God's assurance that he's bigger than death. While I feel death carries no fear for me, can I say the same thing for my patients? For the human lives that I work with that aren’t walking with Christ? This has the makings for an interesting year.
Sunday, August 8, 2010
In the back of my mind, I always wondered if I'd love medicine and being at the hospital as much as I thought I would. You sit in classrooms and pouring through books for years anticipating that one day you'll be with patients and it will all be worth it. The funny thing is that it's a mere hope; that at the end of the day the years of work and the $100 thousand that you've invested in your education will be worth it. Well, last week proved that I do love medicine every bit as much as I thought I did. I think it's a good sign when you spend 30+ hours straight at the hospital and aren't counting down the hours till you can go home. I love the patients (as crazy as they can be), I love the residents, I love the smell and feel of the halls of the hospital. I love suturing, and procedures, and even being confused. I can't believe I'm lucky enough to go into a field that I'm this passionate about.
Monday, June 7, 2010
the book that I love.
Tuesday, April 27, 2010
And here comes the sun
Wednesday, March 17, 2010
Since this blog is mostly for myself anyways, I feel like I need to save this devo that was sent to my inbox mere days after the previous post. Who can accuse God of not knowing what we need to hear.
|
“I was raised to do everything well. That got me through medical school and it has worked well to build my practice. But I’m dropping all kind of balls lately. I have a patient I was working up for back pain. Before I could get the tests done, he was paralyzed from a cord compression, a cancer in his spine. I have another patient with a mammogram that was positive; the report was lost and I didn’t see it for three months. She was not at all happy. I missed my daughter’s gymnastic competition because an emergency came in. I feel like I’m failing everywhere.” I answered him the best way I knew how, “So, you want to be perfect, like me?”
As doctors we are hardwired to be achievers. God placed within us the character to do our best, to get things right---for His glory and for mankind’s benefit. As doctors, mothers, fathers, spouses, church members, we are called by God to excellence; and we expect that from ourselves. But sometimes we carry that expectation too far. Sometimes we expect perfection from our efforts and make perfect performance into an idol. If we choose to do so, at some point that idol will topple over on us and cause us great pain, for we will never be perfect in this life.
There is a clear distinction between excellence and perfection. Excellence is measured by great effort. Perfection is measured by results. God cares about our effort but He does not expect perfect results. When Jesus calls us to be perfect in Matthew 5:48, He is not asking for perfect results; He is calling us toward wholehearted devotion to our Father in heaven. He wants us to do all things well for His glory (Col 3:23), to pour ourselves out in sacrificial service. He wants us to serve Him with our very best, but He expects for us to leave the results to Him (Phil 1:6).
We are called by God to strive for excellence by remaining well read and well skilled, by disciplining ourselves to do our best with each patient and with our families. God smiles on us when we pour ourselves out to serve Him with our best in all areas of our lives. But as we do, we must continually hand the results of these efforts back to Him. Only He knows how to use them well to write His story of redemption.
Saturday, March 13, 2010
never good enough
Group projects are the bane of their existence. "Just scraping by" isn't an option and inevitably they become the "mother" of the group emailing about deadlines, tracking people down and making sure everything gets done. All the while thinking to themselves "I could get this done SO much faster by myself."
I'm glad to say that my perfectionism has softened in the years of medical school (..and college...) I've learned to delegate, to rely more on my leadership than on my compulsion to do everything myself. I've learned that perfection is unattainable in a class of 115 of the brightest students. I've learned that I will never be able to learn everything that I need to know. I've learned the impossibility of knowing everything and being the best and being perfect. More than that, I've learned that I don't want to be perfect. I want to make mistakes in my life. I want to be stupid occassionally. To screw up. To have to admit that I'm human. To risk rejection. To really truly allow people to love me for who I am instead of loving me for the perfect image of myself that I try to project.